Wednesday, February 16, 2011

update on the doctor visit

We saw Ella's cardiologist today and had an EKG, an echo on her heart, an echo on her diaphragm, she had to get blood drawn, we were out for 5 hours, but she was a trooper! We don't know why she has a decreased appetite, but she hasn't gained any weight in the last 3 weeks, and she has grown 2 inches. Her cardiologist decided to stop 2 of her meds, and start her on 2 new meds because after talking to a GI doctor they came to the conclusion that she could have gastritis (ulcer) and because of this she could be developing an oral aversion. This could be causing the vomiting as well. If this is the case we may need to consider a feeding tube temporarily to help her gain some weight so that her immune system doesn't become suppressed. Dr. Ward said that when we see him on the 25th we will see if the new meds have made any difference and see if she has gained any weight, if she is doing better we can wait on the tube, if things have continued as they are now or if they get any worse we will have to admit her into the hospital to try to figure this out. Please be praying for her stomach to heal, for her new meds to work, for her to not have any problems because of the meds she was taken off of, for her to gain weight, for her to not develop a severe oral aversion,  for her diaphragm to heal, and for us to find answers! So now we just keep going and praying that this changes soon! Thank you all for your continued support.

please continue to remember Emma, Lyric, Kaelyn in your prayers as well.


  1. I will be lifting her up in prayers

  2. We are praying right now. Thank you so much for the update.

    The Cole's

  3. Still praying, specifically for the requests.

    Joy/Chandler, OK

  4. You are such a good mama. I'm Jenn's friend HLHS and I'll be praying. Ella is still a beautiful baby. Keep fighting and stay strong!


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