Feel free to look up "amyladawn" on youtube for more videos of Ella! :)
Wednesday, March 28, 2012
Monday, March 26, 2012
Friday, March 23, 2012
pictures as promised! :)
Posted by Amy at 7:31 PM 3 comments:
Sunday, March 11, 2012
A response to our first (and hopefully last) negative comment.
I (Jon) have a few things to say about this comment posted by an "Anonymous" person.
"I realize that she could get really sick if she caught a cold but don't you think that you are going overboard a bit. Are you going to always keep her in a bubble. How will she be able to have friends if you are that paranoid? She will have no immune system because you have kept her sheltered."
I'm not sure who you are, because you chose to be anonymous, but this Blog was designed to update and encourage those who chose to follow Ella's journey, and is not the place to be posting inappropriate
opinions publicly. But I will use this opportunity you've created for me, the Dad, to address some of the questions and thoughts that you, and maybe a few others, may have. First, I don't think you really "realize that she could get really sick if she caught a cold" or you wouldn't have finished your post. I also believe that if you were truly thinking of Ella's well being, and having the information we've been given, you too would be willing to make the sacrifices and hard decisions as we have. No, Lord willing we will not keep Ella in a bubble forever. Our Doctors say that a child under the age of two can be sheltered from germs with little to no weakening to their immune system. Ella still has at least one more open heart surgery to go, it is crucial for her to stay well. So as hard as it my be on Amy and I, Ella is more than enough reason for us to make the hard choices and forgo some things like church, family gatherings, friends, holiday celebrations, ...etc. Also, I think we all know that Ella, 19 months old, still has time, God willing, to not only make new friends but meet the hundreds, even thousands, of people who have supported us and shown us love. I know, they would be honored to be called her friends. I realize that choosing "Anonymous" may have been an accident, that being said this comment was still unappreciated. It's never a good idea to post something that you don't have the confidence enough to put your own name behind. We are fine with people asking questions and even having doubts about the way we do things. We are happy to help educate others about heart defects and our lifestyle, but out right accusing us for the decisions that we have made for OUR special needs child that you clearly don't know about, is hurtful. Please remember that every decision we make is made with the best knowledge we have. We pray and ask her doctors before we go forward, and we know our daughter better then anyone else possibly could.
A BIG THANK YOU to all those faithful friends out there who continue to lift our little family up in prayer, love, and support. It's awesome to experience God answering
your prayers. Doctors tell us they've never seen a baby with her conditions do so well. Ella is a miracle, and that's all there is to it.
Please continue to remember Ella's little heart friends( Emma, Lyric, Annabelle, Scarlet, Evan, Bethany... etc.)
Thanks, and God bless!!! Ella's Daddy
Posted by Amy at 12:03 PM 27 comments:
Thursday, March 8, 2012
As for a heart update, we are very pleased with Ella's heart! She is doing very well and she is holding her sats steady at about 83% her heart rate is nice and steady too! We were told at her last appointment that her next surgery could be as early as this summer, but I'm not convinced it will happen. I don't think they think it will either, it's just an option. That being said, Ella was scheduled to have her routine heart check up yesterday. Considering that it is flu season and that Ella is doing so well, we decided to reschedule (with the cardiologist's consent of course) We rescheduled it for May 21st! This is by far the longest time between doctors appointments EVER! We still see the home health care nurse here once a month, but that should end when the flu season does (can't be here soon enough). Over all we are on track and doing great! Thank you all for your continued prayers for our sunshine, we don't want them to stop just because of a good report. We know things could change in a heart beat, we have seen it. We love you all so much and are beyond grateful for your love, support, and most importantly your prayers!
Posted by Amy at 6:02 PM 6 comments:
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