Thursday, March 19, 2015

Update on Our trip to Dallas

We took Ella to see her GI specialist in Dallas yesterday. It was a smooth trip and Ella did very well. She is still having some trouble eating, lots of stomach pain, her energy level has been a little bit low, and her bowels have still not been normal. She is on four medications/supplements and a special diet to help with this. We are excited we are going to be able to start weaning some of these medications and supplements as she tolerates it. One of Ella's biggest problems is that she doesn't go to the bathroom regularly, and has incredible bladder control. When we saw the doctor yesterday he told Ella she can't hold it like that anymore (we tell her that all the time, but I guess it's different coming from a doctor 😉)! Ella was able to repeat to us what the doctor said and has been doing very very well ever since then! This morning she told me that her stomach felt all better! It's amazing what being regular will do for ones tummy! Please keep praying that we are able to help her move in the right direction and that we are able to wean some of the medicine and lean more on natural sources! We will be heading back to Dallas to follow up with GI and to see cardiology in about 3 months if everything goes well between now and then! As always we are so very thankful for your continued prayers!! 

Tuesday, March 10, 2015


Just a quick update since it's been awhile! Ella is doing fairly well, but is having a few problems. We got a viral bug of some sort that has lasted what seems like forever, but Ella has handled it very well and we are so thankful.

 We are planning to head down to Dallas next week to hopefully figure a few things out. Please pray that the doctors have wisdom and that we are able to get some answers as to what is going on in Ella's body. She looks great most of the time, but Jon and I see it close up and we can tell it's just not quite right, so we just hope the doctors can see what we see and figure out a way to help her.

We would be honored if you would join us in praying for answers for Ella as well as safety from germs and safety in travels. This flu season has been so yucky and we are thankful that so far we have avoided most of the things going around. Also if you would remember our little heart friend "Emma" in your prayers as well as her mom and dad I know they would be grateful! She is having some more complications and it's so hard. You can follow her story on their blog

Here are a few recent pics of our sunshine girl!

         Dressing up like Queen Elsa

           Playing with the neighbors!

        Family walk on Valentine's Day!

These two silly loves on Valentine's Day! 

              Sick baby girl resting. 

            Out for a walk exploring!