We could really use some prayers tonight, Ella is not feeling well at all. We aren't sure what is hurting her but she isn't eating again. It took Jon and I both an hour and a half to force 3 1/2 ounces down her (lots of tears). The bad thing is if we force her too much she will develop an oral aversion and add a whole new set of complications. Tomorrow is the cardiologist appointment where we will determine if a temporary feeding tube is going to be needed. We do not want to go that route at all, it feels like backsliding, but we know the Lord is in control. On a side note I am needing your prayers for myself as well. I am battling multiple physical struggles, nothing compared to what my sunshine has faced but certainly trying for sure. I have not been handling all the stress well lately and my body is letting me have it! So knowing that I tend to get sick when I stress due to it weakening my immune system I am asking you to pray for peace, strength, and health. I am feeling so much guilt lately with all this anxiety, mostly because 1-I know I am supposed to give it to the Lord, and 2- Ella's cardiologist thinks she is experiencing stress due to all she has been through. I guess I feel like if I am stressed she feels stressed and therefore I am ultimately causing her pain! Can you say STRESSFUL! I stress more about not stressing than just about anything else ugh! Anyway long story short BIG DAY TOMORROW and we could really really use the prayers!
Keep being strong girl!! you have been through so much already I don't know how you've done it...sending prayers and Hugs:)xo
ReplyDeletePraying always for all of you-thank you for letting me know better how to pray. Love you all so much-wish I could take all the stress. Please let me know if there is anything you want or need me to do! Heavenly Father please touch & heal Ella once again...comfort Amy & Jon with Your peace that passes understanding. Amen
ReplyDeleteWe are praying for Gods will to be done. Honey a feeding tube is not going backwards. It may get her all nice and fluffy and she may need it for a very short time. The anxiety and stress you feel is normal, we all feel it and when our little ones are sick it just makes us feel worse we want to take their place and struggle for them. Praying for God to give you some peace and some comfort and for him to make himself KNOWN to you today. Just know that you have MANY of us out here storming the gates of heaven for you and Scott and most of all Sweet Ella.
ReplyDeleteMy prayers...Hang in there, God is Good.
ReplyDeleteElla is such a beautiful baby! She is also strong, a fighter. God made her strong. Matthew 11:28-30 says, "Come to Me, all you who labor and are heavy laden, and I will give you rest. Take My yoke upon you and learn from Me, for I am gentle and lowly in heart, and you will find rest for your souls. For My yoke is easy and My burden is light." The rest that Jesus promises is love, healing, and peace with God, not the end of all labor, just peace within it. It is often hard to let go of our problems and our worries, especially when our children are involved. But God knew what and is going to happen and His promise is that He will be with us through it all. He knew Ella before she was born. And, if you rely on Him moment by moment, He will give you the strength you and Ella and your husband need. If a feeding tube is what she needs as of right now, then she needs it. Even in your mind it might seem as a step backward. one thing I have realized through reading your blog, is that Ella is resilient! And God has a purpose for her life! You are an amazing mom-just breathe-even when it's tough rely on Jesus! Praying!
ReplyDeleteYou poor thing! It sounds like a lot to handle and it's not surprising that you would have your own physical struggles. I will be praying for your precious family. Lord, sustain and renew these lovely people and their strong little girl!
ReplyDeletePraying for you Jon, Amy, and Ella. We love you all very much. Wish we could do more.
ReplyDelete“He gives strength to the weary and increases the power of the weak.” –Isaiah 40:29
“Summon your power, O God; show us your strength, O God, as you have done before.” –Psalm 68:28
I can certainly understand why you're stressed and praying that you can relax and enjoy your adorable daughter. Please update us on her appointment. Blessings.
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