Today I'm asking prayers for a new heart baby, someone very dear to my heart.
Yesterday we got a call letting us know that my 5 week old niece, Brooklynn, was being taken by ambulance to Children's with a severely high heart rate of 280 bpm. Once she arrived doctors determined that she has something called wolff parkinson white syndrome (wpw). This is a congenital heart defect. This defect was causing her heart rate to sore to unsafe levels. When this happens it is called supraventricular tachycardia (SVT). She had an echocardiogram that showed her heart was only functioning at 15%. She continued to have problems through the night and all day today, then this afternoon things got worse and after giving lots of meds and trying to get her heart rate down, Brooklynn crashed and her heart rate dropped dangerously low. They had do to some chest compressions and put her on a ventilator. They started a central line but were unable to access an arterial line. She is stable now with a resting heart rate and she is on light sedation/pain meds. This is a defect that is usually outgrown and doesn't usually require any surgery, for that we are thankful. Please pray that God puts His angles around her and our whole family as we are dealing with yet another one of our babies fighting a CHD. Please pray for wisdom for the doctors and for my sister and brother in law as they advocate for their tiny baby girl. Please pray for her three big sisters to be comforted and at peace. We have no doubt that God is in control, but this is still a scary time. I'm so thankful that God prompted my sister to take Brooklynn to the doctor when she did, by following that gut instinct that the vomiting was more then a tummy bug, she saved her daughters life. Right now we just have to wait, wait and pray that her heart makes a full recovery from damage the SVT may have caused and pray hard that she doesn't continue to have these episodes of SVT. We don't take lightly the power of prayer, God is big, God is strong, God is faithful.
Please pray for Brooklynn <3>
Praying so hard!
ReplyDeleteWe will be praying. Is Brooklynn Brandon and Racheal's daughter?
ReplyDeleteShe is in my prayers. I feel it's kind of tragic that you now have two heart babies in your family -- so much worry. Praying that both Brooklyn and Ella will be okay.
ReplyDeletePraying hard for this baby girl and your whole family. Please keep us updated.
ReplyDeleteSo sorry to hear of yet another precious little angel in trouble. I am assuming this is the baby in the picture you sent last week. This is very disturbing but you and Jon can be of comfort to them because of all you have been through. Prayers are coming your way. Please keep us informed about her. Your prayer warriors want to stay busy.
ReplyDeleteI have been reading your blog for a long time and have never commented. Just silently prayed for your sweet little girl! This post hit home with me as I, also as a baby, was diagnosed with WPW disease. Today I am 45 years old and healthy and happy. I pray that this sweet angel turns the corner really quick and grows to be a happy and healthy adult. Praying for both precious girls and their families.
ReplyDeleteShannan/South Carolina