Emma had a cath surgery a few days ago and has since then been having complications. This is the update from Emma's mommy Sarah...
"Emma took a turn for the worst yesterday afternoon/evening. She had to be intubated because of her acidotic blood gases. The problem that we then had was that none of the traditional ventilators were working so we had to put her on an oscillating vent. The challenge then was to correct her acidotic blood gases. It took all through the night and into this morning to see some improvement. During all of this, her heart took a hit and is not functioning like it should. Things are very critical right now but Emma is still fighting so we are too! (they have her sedated and paralyzed). Please pray for our princess as she fights this uphill battle."... Since then this is what Sarah has said..."Emma is stable but not really making much progress. Her heart is not improving and that has us in a bad spot. She is still fighting but her body is really taking a toll. Please keep praying!"
This family is VERY SPECIAL to us. Emma is the ONLY little girl that we know with Ella's same two conditions. Sarah was an answer to my prayers when she wrote to me when Ella was in the hospital. She told me that she was about 2 months behind me in her pregnancy with a little girl named Emma that had been diagnosed with HLHS/RAS. I sat there in shock because the doctors had told us just how rare this combination was. I felt like someone finally would know how I was feeling! I was sad that they had that diagnosis, but I was grateful we would be able to walk the journey together. After Ella had been born and had done so well, we had GREAT hopes that Emma would sail through the surgeries as well. Emma has had a much more challenging path then Ella, for some reason. It certainly doesn't seem fair. We pray for Emma daily, we feel connected to her, we love her. Please Please pray for Emma right now, she is fighting hard for her life and we are grateful that she is stable, but we know she has a lot of healing that needs to take place. Thank you for praying!!
I am a follower of Hope for Emma's Heart, and thank you so much for posting this update for your followers. Scott and Sarah are such wonderful Christian parents and they are being as strong as they possibly can. I know they are horribly frightened right now. Prayer's from so many is such a blessing for these babies. I follow your sweet Ella's updates, too. Found you through Emma's blog. Isn't this wonderful that so many people feel connected by these precious little angels. Thank you again
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