Wednesday, June 2, 2010

update 6-2-10

Well we had our doctor appointment today, thank you to everyone that was praying! I guess I'll get strait to the report. They said that everything looks about the same, but that their was a small improvement in her PFO! It doesn't change anything really statistics wise but the tendency is for the hole to close and hers has ever so slightly widened! At our last visit the opening was 1.7mm to 2mm this time it was 2mm to 3mm, although this is a very very small improvement it gives us hope that it could be the beginning of even more improvement! So I believe our earnest prayers are being heard, please continue to pray for her healing! We still do not know where we will be delivering or when exactly, hopefully we will know in two weeks. Although she is still at significant risk, we are praising the Lord for a small glimpse of hope for her. We were also encouraged that she is continuing to grow exactly on schedule she weighs 3lbs 2oz. She also is getting good blood flow to her brain and all the other major organs despite the obstacles in her heart! The doctor today seemed somewhat optimistic especially since she isn't getting worse! He said "she's doing pretty darn good!" With a smile on his face. We know this is still a long shot and we know that she is not even close to being out of the woods, but we also are rejoicing in this small victory! Her HLHS is still just as severe and the PFO needs to continue to open about 2 more mm in order to not have to do the extra surgery. We desperately want to hold our baby girl before they have to take her to surgery, as of now, we won't get to hold her :( If the PFO continues to open to the appropriate width, we may get to hold her before her first surgery! The doctors don't think that will happen, I am praying that it does :) Thank you so much for your prayers we could not possibly put into words how much they mean to us. Please don't stop praying for Ella, she is strong, but without God's intervention she just doesn't have the greatest odds.


  1. While we have never met, I feel like I know you well. Please know that we have been praying and will continue to pray fervently for Ella as well as for you and John. God holds Ella in His arms and it is such a comfort to know that He loves her even more than you do. Keep the faith!
    Kristi Prince - Taylor's mom

  2. Aunt Rachael love's you sweet Ella and I am praying for you everyday!

  3. We have never met, but I heard about Ella through my son's highschool friend who is in your pastor's youth group. My daughter was born with a congenital heart defect in 1994. It too is very rare. She has had 3 heart surgeries. She is now 15 years old. I would love to talk to you. We have been through this and would love to share with you and maybe help you with a little understanding. I also found out when I was pregnant, so I completely know what you are going through. My e-mail is If you would e-mail me, I will send you my phone number so we can talk. I live in OKC, so we probably have the same cardiologist. Hope to hear from you soon and our prayers go out to you and baby Ella!

  4. Aunt Jenny is praying without ceasing for sweet Ella's healing and holding to hope!! I am praying Romans 15:13 for you and Jon: "May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit."


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