Each moment with Ella is so deeply treasured by Amy and Jon. Ella seems so perfect that at times it is hard to truly comprehend the complexity of her heart condition. Without fail, each discussion with the doctors brings back the stark reality of the long road ahead. Please don’t quit praying. Ella still has a long ways to go.
It was decided yesterday that Ella’s first open heart surgery will take place on Monday. We don’t have an exact time yet. Right after she was born the surgery was on her heart but was able to take place laparoscopically through an entry in her leg. This time they will actually open up her chest. Visitors will not be able to see Ella for many days possibly weeks after this surgery. The risk of infection will be substantially higher than it even is now. Amy and Jon will be able to still be with her though. With Jon not getting much sleep at night they are taking shifts which only leaves one of them in the room with Ella many times. Therefore they will not be able to meet any visitors unless previously arranged.
The doctors said that even with Ella’s first condition fixed her chances of survival do not raise any. The damage caused by that condition is still and will remain present. Her struggle overcoming the following surgeries will be greater than that of a child who only had one of the conditions. I’m glad our God doesn’t work off of statistics, aren’t you? The doctors said when Ella was born she wasn’t as in bad of a condition as he has seen some. Obviously, that still isn’t good but we will take every little bit of better we can. Amy and Jon were again reminded of the marathon they have ahead. Marathon is even to simple of a word for it, the doctors told them yesterday.
So they will continue cherishing the moments, and trusting the Lord for His best plan. Please continue the prayers!
If you would like to send a word of encouragement to them they would love to receive it. Their address at the Ronald McDonald House is:
Amy and Jon Burk
c/o Ronald McDonald House
4707 Bengal Street
Dallas, Texas 75235