Twenty percent chance to live. Twenty percent (20%). That is all the statistics gave sweet Ella. Not worth the hassle, pain, money. Maybe there is just a 20% chance because not enough people are taking the chance. I realize there are many babies who do not survive HLHS. Ella may not survive HLHS. But has this been worth the chance? Absolutely. Worth the pain? Every second. What a blessing Sweet Ella is.
Today Ella has continued to do very well. They removed one drainage tube and she handled it very well. Tomorrow they will take out the only two remaining drainage tubes. They also plan to…are you ready for this?...drum roll please……..take out her ventilator! Praise the Lord. Please pray for her body to handle that procedure well and maintain on her own. (Side Note: I love all of the stuffed animals she has going on in this picture. :) )
They have started weaning her off of her pain medicine. They plan to continue doing that throughout the night and discontinue it all together by morning. This is the only pain medication she is on and unless she shows signs of being in pain, which they don’t anticipate, that will be a done deal. Again, Praise the Lord.
They have been giving Ella “Mommy’s Milk” through the feeding tube. Amy is doing such a great job providing nutrition for Ella. Medical staff also removed the bandage from Ella’s incision. It seems to be healing nicely without infection.
Reports are that today Ella has been very alert. Big eyes wide open observing her surrounding, moving her little feet and hands and even making sweet sounds and sticking out her tongue.
Ok, all together now- Awwwww; and now- HALLELUJAH!!!
Please continue to lift Ella up in prayer. We are so grateful for you interceding on our behalf and for all the blessings the Lord has allowed us to witnesses.