Last night had a lot of scary moments! Things are still not peachy keen but Ella has avoided the machine at least for now. About 11:30pm the doctor said they were at a crossroads. They had to take a path, even if it was the one they didn’t want. They tried the pace maker one more time even though her heart rate was still a bit high for it. Her rate had dropped from 200 down to 175. This morning her heart rate was still high, about 165, and she is still on the pacemaker. So we are still on the “ok” path. Ella has started to show signs of being in pain but they cannot give her any pain medication because of her heart. Please pray for her little body to be at peace and have the ability to rest pain free. I’m not exactly sure what all the doctors are looking for today. I do know her heart rate still needs to slow a bit.
I am sorry I don’t know details about this machine I keep referring to. All I know is the doctors only wanted it as a very very very last resort. As I understand it, there are dangers in putting her on it and even more dangers taking her off of it. Sometimes patients don’t ever come off of it. Seems in some ways to be a type of life support. If we have to use it I will get more details about it. Let’s keep praying that doesn’t happen!
Thank you for your continued prayers. Please keeping lifting Ella and family up as the Lord brings them to mind.
Specific Prayer Requests:
1.) Ella's pain to be gone
2.) Ella's heart rate to return to normal range with correct beating patterns
Thanks for the update - all of us out here in cyberland have been worried about dear Ella.
ReplyDeleteI found Ella's Journey through another blog, but I feel like I know you all. Ella's pain and heart rate will be in my and my husband's prayers today. Baby Eli said a prayer for baby Ella last night :)
Praying fervently for Ella, Amy, & Jon this morning! It sounds like the machine you're talking about is ECMO. It's essentially a bypass machine that takes the work off of the heart and/or lungs & gives them a chance to rest and recover. Praying that the need for that will stay at bay, however it can be a very successful intervention!
ReplyDeleteFight, Ella, fight!!
Heart hugs,
Joye in Raleigh, NC
http://joyemullis.blogspot.com
Mark 11:24 Therefore I say to you whatever things you ask for and when you pray, believe that you receive them, and you will have them.
ReplyDeleteSending special prayers to Ella and her mommy & daddy this morning from Kentucky. We were sitting beside our sweet HLHS baby almost two months ago while he was on the ECMO machine I am almost sure you are referring to. I pray that Ella's heart responds well to the pacemaker and meds! No matter the situation, Our God is GREATER!
ReplyDeleteHeart hugs,
Kristin & Benson Sexton
"Nothing is impossible with God." - Luke 1:37
Keeping her in our prayers!
ReplyDeleteCould the machine you are referring to be ECMO, Extra corporeal membrane oxygenation? (sp?) At anyrate, definitely staying in prayer for Ella and her family.
ReplyDeleteI found your blog through the Sugar Photography website. I just wanted you to know that we are praying hard for baby Ella all the way from Massachusetts. You are a beautiful family and I can't imagine what you are going through. You are such a fighter, Ella! You can do this, baby girl! :)
ReplyDeleteI come, I sit and read and look at her pictures, I cry and I pray. This baby girl has captured my heart and the hearts of so many others. It is amazing to see the outpouring of love coming from so many Mothers hearts.
ReplyDeleteWe are praying!!
ReplyDeletePrayers from UT...
ReplyDeleteWhat a beautiful baby girl!
God bless!
I sit and stare at my new baby girl and can't imagine what you are all going through. We think of you all the time and constantly cheer for Ella.
ReplyDeleteMany many prayers to your sweet little girl!!!
ReplyDeleteThinking of you guys :)
How one little life can bring so many people to their knees is a testament to the power of prayer and the faithfulness of God. My friends are emailing me constantly for updates. It is a privilege to lift baby Ella, Amy, Jon and all those who love her so dearly to our precious Lord continually through the day.
ReplyDeletePraying that today has been a good day for baby Ella, and tonight...a peaceful one for all.
ReplyDelete