I apologize I am just now getting to the update of today. I was so tired after today's events Ella and I took a long nap, then rather than updating right away I spent the evening loving on my girl, now she is sleeping I can update, ( have to have priorities). Just the same I know you are anxious so after a long day and lots of testing, and blood work :( , we are a go for the Glenn open heart procedure first case in the morning! When we met with the surgeon I made him assure me he would do his very best! I asked him if he would be extra extra careful, he said yes, I immediately stepped up to where he was sitting and told him to look in her eyes :) I am convinced that one look in her eyes and he wouldn't be able to stop thinking about her :) sneaky I know :) but a mom has got to do what a mom has got to do! We will be getting to the hospital around 5:30am - 6:00 am surgery will begin sometime around 7:00am. I really don't have much to say other than PLEASE PRAY for Ella tomorrow and the days ahead of recovery. Please spread the word, share the blog, etc. with all your friends that are willing to lift her up in prayer. This surgery is significantly less dangerous than the previous 3 surgeries, however it is still open heart surgery! They said they expect the surgery to last about 4 hours and we are supposed to have hourly updates. One piece of VERY good news is the hospital stay could be much less then we had previously understood it to be!!!! We had originally heard 2 weeks, but today they said if all goes well we are looking at 5 to 7 days in the hospital and then we will stick around in Dallas for a day or two for follow up, then HOME!!!!! We are nervous but optimistic, we thank you in advance for the hundreds of prayers that will be sent her way!
I'm so glad that the hospital stay following this surgery should be much less and that Ella has done so well. We will be praying for her, your family, and the medical team during this phase of her journey. She is truly beautiful!
ReplyDeleteI must say, I just saw this on a friends Facebook post and read thru some of your blog....I would first like to say that you and your husband are amazing people... so full of faith and hope and love for Ella. My heart is so saddened by this.
ReplyDeleteI would like to tell you that thru Ella's journey, you have brought peace to my soul. I cant explain it, but before reading this and seeing her precious face, I was so angry, bitter, and numb. You see, my husband and I lost a baby just a few days after Ella was born in August. The 23rd to be exact. We were 13 weeks along and went in to see our baby for the first time on ultrasound, just to be told that his/her little heart had stopped beating and was gone. Since then, I have contiuned to question "why". Why did this happen to MY precious baby? Why did God take him from me? Why was everyone I know having babies all around me and I was left with empty arms?
I have tried to let the pain go, tried to get pregnant again without success, and in the end, every night I cry or hate or curse God... I learned today how selfish I really have been. Ella has had a rough time in the few short months she has been on this earth and has suffered more than any child should have to..yet the 2 of you are so optomistic and praise God and have faith that he knows what he is doing. I havent been able to do that. I havent been able to make sense of our loss. And maybe thats just it... maybe there IS no sense in it... maybe it just IS...Maybe I am just not the kind of person that would have been able to handle something being wrong when our baby was born, and God knew that. Maybe my lil one wasnt as strong as Ella and wouldnt be able to put up the fight she has. There are so many "maybe's"... but the one thing I DO know now, is that I am not being singled out..God is not punishing me, and I am not the only one with trials in their life. That smile on Ella's face and the smiles and uplifting attitudes that you have, have lifted that rock of sadness that was weighing me down. Maybe Ella is going thru this as a teacher of faith to those of us that are just to weak to have it on our own. Whatever it is, I thank you SOOOOOOO much for having this blog and sharing your experience with everyone. And I pray for Ella...she is a lil miracle worker in my book... :)
I have been keeping up with your blog. Ella is so beautiful and I will definitely be praying for her tonight, tomorrow, and while she recovers. As a homeschooling mom of 5, I can't always reach out to people the way I would like to, but I can pray!
ReplyDeleteI will be praying for all of you and a fast and easy recovery for Ella.
ReplyDeletePraying for your little girl today!! (((HUGS)))
ReplyDeletePraying for sweet Ella this morning!
ReplyDeletePraying, praying, praying!!!!! I pray that you will have God's peace as you await each update on Ella's surgerical progress. Ella is a constant reminder that God is still in the miracle working business. Looking forward to see just how quickly she recovers!
ReplyDeleteJoy/Chandler,OK
Praying for you all today! Unrelated to this post, but I couldn't find an email address or anything to send this to. I wanted to share this website with you. A friend of mine (a professor of mine during my undergrad at OU)has a son, Henry, with this condition. On Henry's website, Erin talks about dealing with the countless surgeries and doctors' visits, the ups and downs, keeping faith. I thought you would like reading some of it. Henry is such an amazing boy with a huge amount of energy and spirit, who has had many, many ups and downs due to HLHS.
ReplyDeletehttp://henrytheblog.com/
I pray God will work miracles and keep Ella safely in his arms throughout your journey.
KPeters--Norman, Okla.
You don't know us, but my husband and I are members of Immanuel Baptist Church, Shawnee. I have checked your blog everyday since first hearing about your precious baby angel being born and the call going out for prayer on her behalf. Today I am praying for complete protection for Ella and for God to guide the thoughts, decision making, and hands of all who will provide care for her during and after her surgery. May God also bring comfort and peace to you, Amy and Jon as you wait. He has brought you this far and will not abandon you. Love in Christ, Linda Holley
ReplyDeleteWhat a precious post. I remember when my oldest son who is now 20, fell out of a two-story window when he was three years old. He landed on our porch but just before he hit the ground, his body hit a clay pot. As we were in the Emergency Room and the doctors were telling us they were going to be running a lot of tests, I told the doctor if my son needed anything, any part of my body, just take it from me and I would gladly die. I meant every word. He is now a third year student at West Point. I pray healing and restoration and protection upon your beautiful daughter and your entire family. Ella has been given amazing parents. Glory to God.
ReplyDelete