To Get You Caught Up!

Wow what a whirl wind! We were discharged from the Dallas Children's Hospital on Friday and we were asked to stay at the Ronald McDonald house until our follow up appointment on Monday! Everything looked great there so we headed back home on Tues. We got home and unloaded, got cleaned up, and headed to bed (around midnight) had to get up at 6:30am for another cardiology appointment here this morning. Whew, we are tired! Ella is doing very well, she is up to 11lbs.13oz.!! She is growing like a wee...flower :) She has had some trouble keeping all of her feeds down since the surgery and she has been having severe gas pains for some time now. After seeing the Doctor today we decided to cut back her calorie intake from 30 cal. per oz. to 24 cal. per.oz. This should help solve  both problems, and as long as she continues to have good weight gain it shouldn't be a problem! We will continue to weigh her regularly and if we have any concerns we will of course see the cardiologist, but if all stays well we don't have to go back to the doctor till her next surgery, which is tentatively penciled in for January 6th 2011! I can't believe her next open heart surgery is just around the corner... I don't feel like we've caught our breath from the last one. Ella continues to light up even the most stressful days with her bright eyes and sweet smile, she is starting to reach out for toys and our faces, she smiles and kicks when she sees her bottle, she supports her head very well, and she loves to "talk"! Also she learned to LAUGH!!! It is seriously THE CUTEST thing I have ever heard! :) We ask that you continue to lift Ella up in prayer during this critical season. We are trying so hard to keep her well, with the doctors reminders that if she gets sick she will be hospitalized and may die. We will be spending the holidays alone this year, we are sad to miss all the festivities, but we are blessed to be able to be home with our sweet baby girl!