After writing my last post about different experiences we have faced in the hospital, I received some negative feedback that I feel the need to address. I don't post negative comments here because I don't think it's necessary, but the truth is although they are rare, they happen.
First and foremost I want to clarify that although we have had some bad experiences, overall we LOVE Dallas Children's Medical Center and the care we receive there. We have had MANY stand out nurses, I have raved about them many times here and we know that the actions of some nurses do not represent all of the staff. The blog was written biased off of collective hospital stays not just recent.
Also I want to clarify that in my last post I mentioned the fact that I am thankful for, and respect nurses. I also talk about how I try to help as much as I can to make their job easier, only not at the risk of hurting my child. I stand by that. I am always as kind as I can be, and I am very thankful for good care. However to those of you who misunderstood and think I am disrespectful to the nurses and see them as the enemy, and that I just get in the way, that is not the case. I'm sorry if I came across too critical.
This blog is a place to document Ella's journey, along the way, it has also become a place for me to share my heart as her mom and to help others see a little bit into what life is like with a terminally ill child. With opening my heart comes the risk of being misunderstood and harshly judged. Granted that the few negative comments have always been "anonymous" and they are inaccurate, they are hurtful just the same. To be misunderstood and mocked is always hurtful.
We are doing the best we can to care for Ella, we are also so very thankful for all of the positive feedback we received on the last post. I am trying not to let the negativity of 2 anonymous people keep me from sharing with the rest of you, but it is discouraging just the same.
In closing, I would like to say again, that I am thankful for and I am respectful of nurses, yes sometimes we receive less then stellar care (if you have ever been in a hospital you know that happens), but we know that nurses work very hard and we know several incredible nurses and doctors that we are honored to be personal friends with. I apologize if my words were misunderstood and hurtful to you in the medical field, clearly, that was not my intent. Those in the medical field have saved my daughters life with their hard work, my gratitude is deeper then I could ever express.
Thank you all who choose to follow Ella's journey and thank you all who encourage me to continue to write from my heart. I pray that my words are uplifting and informative.