We made the reservations for the Ronald McDonald House today... wow it's getting close! Ella gave us a little scare this evening, her oxygen readings were in the low 70's and upper 60's After talking to the cardiologist on call he told us to take another reading an hour later and if it was still low he wanted us to bring her to the ER at Children's. Jon and I felt very uncomfortable with that, we have been told the hospital is the worst place to be because of germs!!! Now two weeks before her surgery we don't want to risk it, however, we didn't want to put her in danger! We also didn't want to have to put her on oxygen again. So I prayed that it would come up so that we could at least wait till office hours so we don't have to go through the ER. We checked it an hour later and it had come back up to the low 80's (perfect)! Praise the Lord! I will be talking to her cardiologist hopefully tomorrow, please continue to pray for her as the surgery approaches. It is important that she is healthy when she goes into the surgery for the outcome to be better! We need wisdom to know how much food she needs to gain the proper amount of weight, wisdom to know when to get her immunizations, wisdom on the timing of this surgery. So scary, thankful the Lord is in control.
Praying for peace, wisdom, guidance and health. Praying for her O2 levels to stay up and for everyone to remain healthy.
ReplyDeleteI am praying for you!! Thanks for keeping us updated. She is such a precious, beautiful baby girl!
ReplyDeletePrayers continue for your wisdom as well as the doctors who care for Ella. God is in control, He will give continue to give you the wisdom you need. Also praying for Ella to stay healthy and gain the weight she needs. Praying that her oxygen levels will stay where they need to be and that everything will be done at exactly the right time for Ella.
ReplyDeleteI pray that you will feel God's peace and strength as a New Year begins.
Ella looks like such an angel in all of her pictures! Such a happy, pretty girl! Praying for wisdom and strength as you start the next part of your journey! God be with you, Ella and her doctors.
ReplyDeleteJon and Amy,
ReplyDeleteWe have been reading your blog for a while but have never commented. We knew your families at Western Hills. We wanted to let you know that we have been and will continue to pray for your sweet baby. We have an eight month old named Hannah. :)
The Cole Family
She's just so adorable! Praying for all of you!
ReplyDeleteSue
I just came across your blog on another heart family's blog. My daughter, Brielle, also has HLHS. She is two and a half right now and doing wonderfully, but it seems just the other day that we were getting ready for her second surgery just as you guys are now. We will definately keep your sweet Ella in our prayers.
ReplyDeleteI noticed that Ella sees a cardiologist in OKC. We also live in OK and see Dr. Ward at OU Children's. If you are ever interested in getting in touch feel free to email me at Aquabean216@hotmail.com I know it always helped me to have other families that had been there to talk to.
Heart Hugs,
Tina LeMire
mom to Brielle - HLHS
Praying for you as you make your way to Dallas tomorrow, and we will be lifting sweet Ella in prayer over the next few days! I know that Emma is still in Dallas...will you Guys get to visit with her family? I live in Dallas and we had snow yesterday, so dress warm its gonna be very cold the rest of the week.
ReplyDeletePraying for you all as you prepare for Ella's next surgery. Praying that all testing and evaluations go perfect and that surgery will go as expected and Ella's recovery will be quick and easy.
ReplyDeleteJoy/Chandler, OK
Praying for you guys, that the next few days will go smoothly!! We'll be up at Children's in Denver for Kaelyn's cath tonight thru Thurs. So I'll have lots of 'down' time to think about and pray for you guys!
ReplyDelete