I (Jon) have a few things to say about this comment posted by an "Anonymous" person.
"I realize that she could get really sick if she caught a cold but don't you think that you are going overboard a bit. Are you going to always keep her in a bubble. How will she be able to have friends if you are that paranoid? She will have no immune system because you have kept her sheltered."
I'm not sure who you are, because you chose to be anonymous, but this Blog was designed to update and encourage those who chose to follow Ella's journey, and is not the place to be posting inappropriate
opinions publicly. But I will use this opportunity you've created for me, the Dad, to address some of the questions and thoughts that you, and maybe a few others, may have. First, I don't think you really "realize that she could get really sick if she caught a cold" or you wouldn't have finished your post. I also believe that if you were truly thinking of Ella's well being, and having the information we've been given, you too would be willing to make the sacrifices and hard decisions as we have. No, Lord willing we will not keep Ella in a bubble forever. Our Doctors say that a child under the age of two can be sheltered from germs with little to no weakening to their immune system. Ella still has at least one more open heart surgery to go, it is crucial for her to stay well. So as hard as it my be on Amy and I, Ella is more than enough reason for us to make the hard choices and forgo some things like church, family gatherings, friends, holiday celebrations, ...etc. Also, I think we all know that Ella, 19 months old, still has time, God willing, to not only make new friends but meet the hundreds, even thousands, of people who have supported us and shown us love. I know, they would be honored to be called her friends. I realize that choosing "Anonymous" may have been an accident, that being said this comment was still unappreciated. It's never a good idea to post something that you don't have the confidence enough to put your own name behind. We are fine with people asking questions and even having doubts about the way we do things. We are happy to help educate others about heart defects and our lifestyle, but out right accusing us for the decisions that we have made for OUR special needs child that you clearly don't know about, is hurtful. Please remember that every decision we make is made with the best knowledge we have. We pray and ask her doctors before we go forward, and we know our daughter better then anyone else possibly could.
A BIG THANK YOU to all those faithful friends out there who continue to lift our little family up in prayer, love, and support. It's awesome to experience God answering
your prayers. Doctors tell us they've never seen a baby with her conditions do so well. Ella is a miracle, and that's all there is to it.
Please continue to remember Ella's little heart friends( Emma, Lyric, Annabelle, Scarlet, Evan, Bethany... etc.)
Thanks, and God bless!!! Ella's Daddy