Overall she is handling this very well, I am thankful for her constant smiles and determination to keep going even when she is tired. Sometimes while she is playing she gets so winded she will fall down, I always see a deep determination every time she immediately jumps back up and keeps playing. If I didn't make her take breaks and catch her breath I'm pretty sure she would never let her heart slow her down. That determination I see in her is my inspiration every moment, because it's just really really hard to see, some days are harder then others, but I know she loves life and she is SO very worth the fight!
We lost two babies this week in my online heart mom group, it's always a punch to all of our mommy guts whenever we lose one of "our" own.
This Friday the 1st is wear red to bring awareness for CHDs (congenital heart defects) We would be honored if you would wear red in honor of Ella and all of the little heart warriors! Feel free to comment and let us know you will be in red for our girl this Friday! Awareness is so important!
Over the next month we would really covet your prayers as it is one of the worst of the flu season. Please pray that we all remain healthy and strong, please pray that Ella's sats hold up until God's perfect timing for her surgery, and pray that we will have peace and strength when that time comes.
Thank you all for helping left us up when the road is so scary, we know that God is good and that He is our strength!
Our Ella girl and all of her special friends, she sleeps with them every night.